All the updated news related to NICE

All the news related to NICE updated in real time

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Rare genetic blood disorder means Oran cannot go out in natural light

Imagine having to sit in complete darkness for a week, to recover from the severe effects of a genetic condition, for which you are being denied an available treatment. That is the desperate situation facing Oran Carlin (15) from the Templegrove ...

25 Jul 2023 at 12:09

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Puberty blockers: Why are they so contentious?

Puberty blockers have become a huge talking point recently. Given the intensity of the debate, Derry Now sought a wide range of opinions for a timely and considered feature on the issue. Puberty blockers are commonly prescribed, for short-term ...

18 Sept 2023 at 13:30

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Access to ‘Life-saving’ cystic fibrosis drugs must not be lost - Durkan

Serious concern has been expressed about the possibility of access to three cystic fibrosis (CF) drugs being curtailed. According to Mark H Durkan MLA (SDLP), access to the three CF drugs; Orkambi, Symkevi and Kaftrio could be under threat. ...

13 Nov 2023 at 13:04

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Derry News always first with the news

Maidin mhaith. Here is the front page of today's Derry News. NICE and NHS England blocking availability of blood disorder treatment in the North. Baby Rían's Big Bingo Night. 'Housing Crisis going back of the days of Springtown Camp' First ...

12 Oct 2023 at 07:00

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Derry patients denied blood disorder treatment available in Scotland

CLINUVEL, the pharmaceutical company which has developed a successful treatment for the life-limiting condition erythropoietic protoporphyria (EPP) is preparing to mount a legal challenge in the form of a judicial review against the ...

12 Oct 2023 at 15:15

Northern Ireland

Minister to ask trust for reasons it cannot offer new muscular dystrophy drug

The Health minister is to press the Belfast Trust on its reasons for not making available a new drug to treat muscular dystrophy. Mike Nesbitt insisted he would follow up on the issue after a 12-year-old boy from Newry said it was ...

18 Feb 2025 at 17:59

Northern Ireland

First obesity management service approved for Northern Ireland

Northern Ireland’s first regional obesity management service has been approved by Health Minister Mike Nesbitt. The first phase of the new service is scheduled to start early next year and the Department of Health has said it ...

21 May 2025 at 12:53

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